--written 2 years
ago-- he is now 6 (added to this Site September 29th 2002)
Sean has been
diagnosed with SDS for almost 3 years now. He just recently turned 4 and
we never thought we would be eligible for Make-A-Wish, even though we
know the seriousness of the disease. It is hard to believe that your
child has a potentially fatal illness. Mere words cannot describe the
ache in you have in your heart knowing that you have a child with a
potentially fatal illness. In April of 2000, Sean and his brother Joseph
(who also has SDS), had bone marrow biopsies. Both boys had an abnormal
percentage of blasts in their marrow. Knowing that SDS can be considered
a preleukemic syndrome, these results prompted us to contact Make A
Wish. We had mixed emotions about it all. Part of us wanted desperately
to hear that our children didn't have a life threatening illness and
that they did not qualify for a Wish, while the other part of us wanted
to see them get what they wished for most. The boys doctors talked to
the MAW people and they each were approved for receiving a wish.
Sean only wanted
one thing: to meet Steve from Blue's Clues. Once he found out he was
going to meet Steve, he started making big plans. His first comment upon
hearing the news was, "Can I wear my Steve shirt, my Steve socks, my
Steve pants and my Steve shoes when I meet Steve?" He talked about
flying an airplane and asked if daddy was going to be the pilot. Each
day brought a new twist on the way it would happen. Once we found out we
were going to New York City to meet Steve, he and his older brother,
Matthew, wanted to see the Statue of Liberty, too. The trip turned out
to be better than they ever dreamed.
A stretch limo
picked us up at 6 am Saturday morning to bring us to the airport. They
enjoyed the flight to New York City. In fact, when we landed, Joseph
yelled, "Yeah! New York City!" Another limo brought us to our hotel. The
doorman at the hotel was such a nice man. His name was Joseph. The boys
were very excited about their first taxi cab ride and wanted to hail the
cab themselves. Joseph went up to the corner and talked to a cab driver
that was waiting there. The boys didn't have a clue. They all stood at
the curb waving their arms yelling, "Taxi! Taxi!" Oh, to see the look on
their faces when the cab driver stopped moments later! We spent Saturday
afternoon at the Bronx Zoo.
Sunday was the big
day to meet Steve! Sean made sure his whole wardrobe was just right. We
rode in another limo to Serendipity Restaurant where we would meet Steve
for lunch. We were brought upstairs to a table full of Blue's Clues toys
for all three of our boys. Steve came up the stairs and asked Sean, "Are
you Sean?" Sean managed to squeak out "yes". He was in awe to see the
real Steve. Steve played with Sean for quite a while, drawing, coloring
and playing with play dough. Sean would stop and play for a while and
then would stop and stare at Steve for a few moments before starting to
play again. When it came time to order, Steve said, "I'll have what he
is having" while pointing to Sean. The boys split a frozen hot chocolate
(a Serendipity specialty) and played a bit more with Steve. Blue even
called Sean on Steve's cell phone and each of the boys talked to her.
After two hours,
it was time to leave. We said our good-byes and headed to the limo
loaded down with Blue's Clues memorabilia. We did see the Statue of
Liberty the next day. By this time, Sean was complaining of being tired
and not feeling well. He said his tummy hurt. By the time we got to the
airport he was running a fever and not looking well. We arrived at the
airport to find that our flight was cancelled and we were booked on a
flight later that night. Sean began having stomach problems and crying,
but we made it home safely. It was a reminder of the reality of his
illness amidst the glorious wish trip and it made us more grateful that
we were able to go to New York City.
When asked what
the favorite part of his trip is, Sean Says, "Meeting Steve and playing
play dough". He also remembers that Steve ate the same thing as he did
and says, "Steve is my Friend". He doesn't remember being tired or
getting sick, he only remembers meeting Steve, going to the zoo and
seeing the Statue of Liberty.
No matter what the
future brings we will always have the memories of his special wish.
We would like to thank Make A Wish, Steve and all those who made his
dream come true.
We will always treasure these memories.
Thank you for letting me share Sean's wish with all of you.
Pattie Curran